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Today is World Autism Awareness Day

Not only is today World Autism Awareness Day, but April is National Autism Awareness Month and it feels very different to me this year.

World Autism Awareness Day

This year, we know that our son has Asperger’s Syndrome. For many years, I suspected that my son was on the spectrum. Almost a year ago, we found the one medical professional that really got to the bottom of everything that was going on. She listened, watched, observed at school, and tested our kiddo. She knew that this was a topic that upset me. You see, for many years we had people say yes and no over and over again. It wasn’t necessarily that the diagnosis of autism bothered me, it was the how. As an educator I am told not to judge people too quickly. Yet, several times, so-called professionals would meet my child and diagnose him within ten minutes. They didn’t talk, play, or interact with him during that time. They were talking with me and made the call on nothing else.

Autism RibbonThis year, I am an autism advocate and warrior. I am on a mission to make my son’s life better and to help others to understand him. He may be an Aspie, but it is not who he is. Thanks to an amazing autism community in the Capital Region and beyond we have found resources that have been beyond helpful, met fantastic friends, and educated ourselves and others.

The truth is we know NHL best and we are the ones that are going to battle to get him what he needs to be as successful as he can. His autism diagnosis has not been a bad thing, it helped us to finally have answers. It has allowed us to better understand our son and also TechyDad. You see NHL’s diagnosis actually opened his eyes to what he had been living and dealing with his entire life.

Yes, the geek that I fell in love with and married almost 12 years ago is also an Aspie. It explains a lot and has helped our family. TechyDad has been able to explain to NHL things that he has done in his life to learn how to relate in certain stressful social situations.

My biggest wish for all those living with Autism in their lives is to find acceptance. Too many people judge, point fingers, and blame. Rather than do this, talk to families and friends you may know who have members on the spectrum and get educated. Do not look at the media for answers because they often sensationalize too much and are not always honest about things. If you find yourself with an autism diagnosis for your child, it can be overwhelming. I had time as we sought answers to learn to accept things. Still, it was hard to know where to turn first. My advice is to quickly look for support groups in your area. Find other parents and families that you can work with and who can help you learn the system. Knowledge is power and so is being part of a very supportive community. 

If you take one other thing away from this post please remember that autism is a neurological and not psychological. People with autism are wired differently, not worse.

It's Me

Posts about autism written by TechyDad can be found here including Asperger’s Syndrome Resources. I have linked to some of my previous posts about autism above, but others can be located here.

Disclosure: The World Autism Awareness Day logo came from Autism Speaks and other materials can be found on their website. The Autism Awareness ribbon icon above was created by Melesse and comes from Wikimedia Commons.

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My Own Little Roger Rabbit

TechyDad and I both love to share movies and parts of our childhood with the boys. One of our latest is Roger Rabbit. While NHL had seen it before, JSL had never really sat down to watch it. Of course, he had met a giant Roger while visiting Walt Disney World.

Roger Rabbit at Disney's Pop Century Resort

Granted, JSL did not remember seeing this monster version of Roger. Over the last week, he has decided that it is extremely funny to reply to everyone like Roger. As the days continued, he really got the voice down. A milestone was happening and, as we got out of the car from school the other day, I mentioned I wanted to capture this on video. Well, JSL took that to mean right then and there. The problem was that my hands were full with school gear since NHL was at Hebrew School, and well I didn’t have my video camera.

As my five year old continued to insist and find just the right spot, I agreed. I told him we would test out the new Droid RAZR HD phone that I received as part of the Verizon Lifestyle Blogger program. I have to admit that in the past I have not used my Droid Bionic for video much. It was not the easiest to use and, in a pinch, I always have my regular camera.

JSL was being quite the entertainer. He was super excited and talking fast. Still, you will see from this video that he has got the Roger voice down.

When we got back into the house, I took the video off my phone along with some photos I had taken of the snow earlier in the day. Then I processed the video (had to flip it – ooops) and used my phone to record some audio with an app for the introduction. When it was finished, I put it onto YouTube to share.

I would love to know what parenting moments you have captured on the go with your cell phone?

It's Me

Disclosure: As a member of the Verizon Lifestyle Blogger program, I am testing out different devices and sharing how I utilize them in my life. No other compensation was received and all opinions are my own. We have been long time Verizon Wireless customers.

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Big Wheel Riding

Weather is unpredictable here in Upstate New York. If my five year old son sees the sun out, it means he wants to be outside. It may be thirty degrees and wind chills factoring in, but he wants to run and get energy out.

This weekend, he helped us to get some Passover shopping done, so we (well –er Techydad) put his new Big Wheels together. To document this experience, I pulled out my new RAZR HD phone that arrived as part of the Verizon Lifestyle Blogger program to capture some moments.

TechyDad and his little helper got most of the Big Wheel together without a problem. JSL really wanted to head outside after it was put together.

Big Wheel Construction

Of course, there was a little snaffu. The handle bar of the Big Wheel would not attach properly. TechyDad eventually had to stop for the evening. After Hebrew School, JSL and I went to see if Papa could help figure out another option. With some extra tools, we were able to fix the part and attach the handle bar securely.

Fixing the Big Wheel

That big smile on the kiddo made our day. It also meant it was time to go outside. While it was a gorgeous day, it was cold and windy. Keeping hands out to use my phone and camera was tricky. I snapped some photos and later made a collage to share with TechyDad, Nana, and Instagram.

Big Wheel Riding

A little over a year ago, I made the switch to being a Smartphone carrier, and I can’t imagine going back. Thanks to The RAZR HD, I was able to capture milestones, share them with family, and get some fun photos for blog posts.

It's Me

Disclosure: As a member of the Verizon Lifestyle Blogger program, I am testing out different devices and sharing how I utilize them in my life. No other compensation was received and all opinions are my own. We have been long time Verizon Wireless customers.

All of the photos were taken with my RAZR HD and I used the following apps during the day:

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Simple Wishes from a Mother

Autism RibbonTen years ago I was excited, nervous, and dreaming of what my first born child would look like. By this time, I already knew that TechyDad and I would be having a little boy. We spent a long time getting things ready for NHL’s arrival. When he was born, I would spend hours simply looking at his adorable little face sleeping. There were no cares, worries, or problems that I could not fix.

During those days, my wish for NHL was simple. I wanted him to grow up healthy, be strong (physically and emotionally), use this brain for good things, and be the best he could be in whatever career he wanted.

Now, I sit here with very different wishes for my son. That original life goal is still there and I know he will get there as an adult. These days I have new wishes that crop up daily. You see, I am an autism warrior parent. Each and every day, I get up I have to worry about my child and how the world around him will understand, accept, and work with him. Our journey to an autism diagnosis was not easy and, being naïve, I honestly thought it would help a lot. As a parent, it has helped me to understand how my child sees the world. As an advocate, it has made the hill we have to climb with society steeper.

After taking the kids to school, I was reflecting on new wishes that I have these day. Some are hard to type and admit, while other are sad that I have to even acknowledge them.

Simple Wishes for my son

I wish…

– that I could take all of your worries away. No matter how big or how small, I wish I could make them all vanish so you can be a kid and enjoy everything around you. Whether they are caused by people, places, things, noises, or other items I would make them vanish if I knew how.

– people would understand how literal you are. Sarcasm is a language that is foreign to you and may never be something that you understand. This is not a bad thing, just a fact that explains a lot.

– others could understand that a smirk and laughter does not mean that you are planning something. 99 percent of the time this shows us that you are starting to worry and panic about something. This is a sign for those around you to check in and see what is wrong, not to yell/scream/taunt/threaten or punish you.

– peers could be educated to understand autism. Knowledge is power and if they knew I am guessing they would be little advocates helping you along the way, especially when you get so worried about certain things.

– I could stop others from bullying you. Whether perceived or really happening, you feel this and it makes you sad, anxious, and upset.

– everyone could understand that what you do is not acting out, it’s because you are wired differently. This does not mean in a worse way. It simply is who you are and makes you the sweet child and unique young person that you are becoming. At nine, your strategies to cope are limited and the adults in your life need to work as a team to help you with this.

– there were many more calm days and that the world did not seem so hectic to you. I can not even imagine trying to figure out the crazy neuro-typical world that we all live in from your perspective. I promise to help and guide you and be your biggest advocate no matter what.

Yes, these are the items that race through my head each and every day. These are the reasons we take it one day at a time and keep on swimming. No doubt these are similar things that other parents of children with autism face and then some every day of their lives.

Now I must push forward and help my child to reach for the stars and not to settle. I simply will not let him give up on that one wish that I had almost ten years ago.

It's Me

Disclosure: The Autism Awareness ribbon icon above was created by Melesse and comes from Wikimedia Commons.

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Helping Children During a Tantrum

We have all been there at one time or another. A tired, cranky, over stimulated child that has had too much and begins to act out. Most of the time, we can see it coming, but sometimes there is just nothing we can do about it. There are days that we just have to roll with what is happening to get errands out of the way.

Autism RibbonWe may picture toddler aged children being the only ones that have a public tantrum.Of course, they are not the only ones that can have meltdowns. Children with special needs (or otherwise), like my older son with Asperger’s, can become overwhelmed with situations. Sometimes, their only way to respond and let us know they are anxious is to cry. While a parent may get a sympathetic nod from others when a toddler melts down, it is not the same when you see a crying and hysterical older child. Invisible items like autism mean that we need to think ahead and have a game plan. This reality made me think of a past project that I wrote about toddler tantrums. Many of the items in it are relevant to children of different age levels that may need to have their attention redirected in a moment of need.

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Toddlers and tantrums, they often go hand in hand. The reality is that they are a normal part of development for children. Toddlers are learning about the world around them and trying to assert their individuality. Since they are only able to verbalize their thoughts to a certain degree, body language, along with screams/cries in the form of a full blown tantrum may result.

As a parent, there are times that you may see a tantrum coming and be able to prevent a complete and total meltdown in your child. Asking your child to leave a party where they are having fun and playing nicely may not result in a favorable situation. What may help is to warn your child that you will be leaving soon. Doing this one or two times can allow your toddler to wrap up their play and get ready to go. Do not tell them they have five more minutes to go. Kids this age do not understand time, it is a completely abstract concept to them. Presetting is huge for children of all ages.

JSL-before-tantrum

Of course, there are times that tantrums may just crop up. Case in point was in February 2010. I had to run some errands with my two year old son. JSL was in a decent mood when we began our travels. Things started to sour as we went into the grocery store. My strong willed two year old decided that he was NOT going to get into the shopping cart at Price Chopper. His face at the time tells the entire story.

Yes, I stopped and took a photo of my toddler having a tantrum. Often times, I have found that acting silly, trying to divert his attention from the situation, and taking photos help to refocus him away from a complete meltdown. In this case, I was not so lucky. We continued into the store and, after a short time, JSL recalled why he was upset and began part two of his tantrum.

Why was he so upset you ask? My independent two year old did not want to be confined in a shopping cart. JSL wanted to walk and help Mama. This was not on my agenda. I wanted to go quickly and have him where I could see him. This tantrum process was very new to me. Although JSL was not my first child, I never had this with my older son. JSL was living up to the terrible two tantrums that give toddlers a bad rap.

So, what do you do when your child has a tantrum? Do you let them get it out of their system, leave the situation, or try to divert their attention?

It's Me

Disclosure: Parts of this post were previously published on a project I worked on. The text is mostly the same, but I placed a new introduction to go along with a topic that continues to be important for families. The Autism Awareness ribbon icon above was created by Melesse and comes from Wikimedia Commons.

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