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Getting ready for Halloween 2010

Posted on October 30, 2010 9:05 pm by TheAngelForever

Dear NHL and JSL,

The two of you are so excited about Halloween this year. Since you were both sick a year ago, we did not have a lot of celebrating to do. Last night, we went to the school Halloween party. The two of you got dressed in your costumes and were ready to go in minutes.

When we got there, you both ran to the doors of the gym. Once inside, you were in love with all of the fun games to play. Of course, the prizes in the end were also a nice perk.

Then, after some pizza and a radioactive looking drink, you both decorated a pumpkin. JSL was so proud of his work.

Today, we decided to carve our pumpkin. When it was time to do it, only JSL was really excited. Of course, that changed you were asked to touch the pumpkin guts. This was the first pumpking that we have carved (more about that soon).

Lots more fun coming tomorrow. I can not wait to watch the two of you trick-or-treating together, the way it always should be.

Love,

Mommy

_______________________________________

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Categories:
brothers Dear Kid Saturday family holidays jsl nhl photos school weekend

Trying to forget and live in the moment

Posted on October 28, 2010 12:14 pm by TheAngelForever

Stress. It is something that has been invading my life a lot in recent weeks. Rather than talk about it today, I am off to enjoy a day playing Candy Land and running in the sun with my little guy.

For a few minutes, I will try to forget about:

Hysterics from the 3 year old at nursery school drop off
Negative e-mails/calls from many sources
Failure of our education system to assist gifted students
Inability to control schedules of all kinds

I know that is very vague, but a snap shot of several big items that have constantly been on my mind. Once again, I fully admit that being an adult is very, very, very overrated.

*sigh*

As I head off, I must remind myself of one very important item. I am not failing as a parent. The system is failing most children. I am the best advocate for my children and will never give up in my fight for their rights.

Categories:
decisions Educational jsl losing my mind me moments photos sahm vent

Autumn fun in the sun

Posted on October 27, 2010 7:26 am by TheAngelForever

Categories:
jsl sahm weather Wordless Wednesday

Another febrile seizure anniversary coming

Posted on October 25, 2010 12:11 pm by TheAngelForever

The other day, it hit me. It has been almost a year since JSL’s last febrile seizure on October 29, 2009. I should be optimistic about this milestone, but we have been there and done that before. JSL’s febrile seizure nearly twelve months ago was his fourth. I had three as a child, TechyDad at least two, and NHL only one, so we know all too much about them. Still, I look at my bubbly child and wonder, will there be another?

Will we need to go on another ambulance ride to figure out why he has a raging fever and seized? I do not obsess over this, yet it is on my mind a lot right now. It is hard not to when you have seen your child stop breathing four times in less than three years’ time.

The first febrile seizure was when JSL was nine months old in February 2008. That was quite possibly the darkest night of my life. The night that my baby’s lifeless gray body had to have breaths of life blown into him by my mother.

A four day hospital stay resulted. I wrote about it at the time, and, then a year later, in my post called Memories of THAT night in February. At the time, I celebrated the fact that JSL had gone a year since his one and only febrile seizure. Typically, that is a huge accomplished and means that a child is less likely to have another. Something I have learned, JSL is not a typical little guy. Less than two months later, I would be writing about JSL having his second and third febrile seisures in less than 30 hours.

Seven months later, while home alone with the boys my worst nightmare happened. While recovering from H1N1, NHL had to help me let paramedics into our house. While changing his diaper, just moments after running around and playing with his brother, JSL had his fourth febrile seizure. To this day we are still not sure what caused that one.

Now, I just hope and pray that we can continue to add additional time onto our watch since JSL’s last febrile seizure. I promise not to jump each time the phone rings and it is nursery school, but I think you can probably understand why the underlying fear will remain for years to come.

Now, I am off to give my little guy a great big hug.