Doctor visit and waiting game

For just over three weeks JSL has been battling something. The poor kid is only 9 1/2 months old, so that is a long time in his short life. Yesterday I was really flipping out because of the way he was acting, the increased mucous and change in the appearance, and the fact that he was hitting his head and pulling on his ears. Although cute, it is not good when he does a Home Alone impression. His poor cheeks and head and ears are getting a beating from the kid.

Although not taken yesterday, JSL looked like this again. This photo was taken the day before he was rushed to the ER by ambulance. VERY serious monkey who was not amused by much.

Cranky little JSL

 After picking NHL up from school the doctor’s nurse called back to see what was going on. I explained that the symptoms were EXACTLY the same as they were the days before he had his febrile seizure and was hospitalized. Based on this and the hitting/tugging of his face/ears they double booked us into get seen. So we went back up to their office at 3:15 and my father watched NHL. We saw the doctor that was on call the weekend of the hospitalization. He knew most of what had happened then, had been briefed from the PA that had seen him before that, and also knew we had been in since then (just last Friday for the "well" baby visit).

The doctor spent a lot of time with us. He went over everything that had happened, what was going on again, how long it had been since he was on antibiotics and then did a very thorough exam. I think he was anxious about the temperature going back up again and wanted to find a cause so we could stop it. He did a quick strep test that came back negative, listened to his lungs (still clear thank goodness) and eventually went to the ears as the last stop. Right ear looked great. . . then it was the ear that has been trouble’s turn. Sure enough the left ear had what he said was a lot of fluid, but not red or infected.

*Sigh*

There is absolutely nothing we can do to help the poor kid at this point. The charming FDA has made it impossbile to help a child that is under two to dry them out with a decongestant (JSL desperately needs one). GRRRRRRRRR!  I am so ticked off – insert many other nasty words here because I want to use them.

So cure the child I dare you. Basically it will likely only be a matter of time until the ear is infected again. We have to try to avoid places with lots of germs – LOL. The doctor did say no cousin B-day party or travel this weekend until we know what is going on. So we wait and see and hope it will go away. I have an antibiotic prescription at home to start if his temperature goes to 100.5 to start immediately and then make an appointment to have the ear checked. At that point IF it is an infection we will likely be off to see an ENT. It really stinks that thanks to not being able to try medical approach we may be forced into surgery for the baby.

*evil glare*

I am extremely nervous. The Friday that the photo above was taken JSL saw the PA at the doctor’s office and was told he had a virus and some fluid in his ear, but no infection. The rest as you know is history. So the next 24-48 hours will be filled with much anxiety.

So that is the update at this point. Now to try to get the little monkey to stay hydrated and figure out what to do about the meeting with the school district on Thursday about NHL for next year. Please tell me I can not go and write me a note.

 

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  • AJ says:

    Can you give him some Benadryl to dry him up, or will that not work? Arrrgh! Or, if they have decongestants for kids over 2, maybe give him a little bit of that? Desperate situations call for desperate measures. ;-) Many many “GET THE HECK OUT, GERMS!!” vibes coming your way! Oh, and some prayers too.

    xoxo,

    AJ

  • Kim says:

    I was told that I could give Zoe dimetapp when we were at the docs last week. 1/4 tsp. it was enough to get the dripping under control. She’s 16 pounds if that helps.

    I hope he avoids the antibiotic.

    k

  • Poor little guy. I’m so sorry you guys can’t get any answers…I can only imagine how this must be so scary for you. Y’all are in my prayers.

  • Kmelion says:

    Steam therapy with eucalyptus oil and tea tree oil might help.

    Also you might want to start giving him a daily probiotic.

  • Shawna says:

    You need some nice warm weather to make him feel well again! Poor JSL (and poor Mom & Dad, too–having to deal with the continual sickness!). Hoping he gets better soon–for good!

  • Renee says:

    Keeghan goes in next week to get his tubes… I am totally right there with you on cussing the stupid FDA. Kids NEED cold medicine sometimes. Don’t recall the cold meds, recall the stupid parents who don’t know how to use it right! Sheesh! I hope JSL is feeling better by now, I’m playing blog catch up tonight so forgive me for not seeing this before.

  • TheAngelForever says:

    Sorry to everyone for not getting back to comment here for SO long. Things were just very crazy here. We are still in a holding pattern on the germ factory. Temperature goes up and down, but so far no antibiotic . . . YET.

    AJ Thanks for stopping by – nice to see you here :) Benedryl is not a decongestant, so no help in drying things up. Merci for the bye-bye germ wishes.

    Kim: It really is odd how some doctors will and some will not tell you what to do. I know ours did when NHL was little. I remember giving him what you gave Zoe at this age (certainly under 2).

    Mommy Cracked: Thank you for the well wishes. This winter has just been brutal for so many of us, including your poor family. I hope you feel better soon as well.

    Kmelion: Thanks for the suggestions, we may try those if he gets worse again. We have been doing a lot of yogurt to try to keep things away. Thankfully we never needed another antibiotic after the first . . . at least not YET.

    Shawna: Yes, warm weather would be wonderful. I can not wait to be able to take the boys outside for some major fresh air without worrying about them freezing a body part off. Thanks for the well wishes.

    Renee: Good luck to Keeghan when he has his tubes in. Please keep me posted on how that goes. The FDA just does not think. This will not stop people who are not smart enough anyway. No need to apologize on not writing sooner, I have been horrible at commenting lately with everything and well . . . you have a lot more on your plate. Hugs to you and all of the K’s.

    C’est Moi